Make your disease understandable
Use this worksheet to write bold, clear descriptions of your disease.
The Playbook On
Identifying people who care and how to get more people to take action.
Media attention can be incredibly helpful if you’re hoping to increase public awareness of a rare disease organization. A thoughtful media strategy puts a face to the disease, educates the public and recruits new supporters who care about and relate to the mission. Even without access to major publications or news shows, it’s possible to go viral by sharing a clear, relatable and personal story on social media.
I AM ALS Co-Founder Brian Wallach found an audience through his personal Twitter account. He shares short, purposeful stories about life with ALS and the account has been shared by major influencers across a spectrum in sports, politics, acting and music. As an organization, I AM ALS has found success in raising awareness via our dogged approach to all platforms, never shying away from bold or otherwise eye-catching messages, including during a Times Square billboard takeover and in an interview on the TODAY Show.
Below are worksheets to get you started in shaping your organizing approach. They can be downloaded or saved in your queue by clicking the flag in the top left corner of each worksheet tile and emailed to yourself in the top right corner of your screen to begin work immediately as you shape your future movement. To access worksheets across all categories of this Playbook click "see all worksheets." Nervous? Don't be. You got this.
Use this worksheet to write bold, clear descriptions of your disease.
Use this worksheet to identify the different channels to share your message, and how to best utilize them.
This worksheet can help you flesh out the story of your organization and the people who built it.
Saved Worksheets
Thank you! We hope these worksheets help you build a sustaining and powerful movement.